A woman in Kherson navigates the horrors and absurdities of daily life…
Eyes On Ukraine
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This film follows 24-year-old Yana Panfilova, a Ukrainian HIV-positive activist living in Berlin. Born with the virus and exiled from her home in Kyiv because of the war with Russia, she continues to run Teenergizer, a large youth organization which supports young people in Ukraine who face challenges around HIV and mental health.
To shed light on the growing HIV crisis and stigma associated with the virus in her country, Yana works with veteran photographer Gideon Mendel who, after decades chronicling the epidemic, has decided to hand over the camera to HIV-positive people, turning subjects into creators.
After Gideon trains Yana to use photography as a tool to tell her story, she sets out to share moments of her life. Her effort becomes pivotal as she inspires three young people living with HIV from Ukraine to join forces. After completing their own photographic training in Berlin, Liza, Mariia and Yehor return to Ukraine to shed light on a unique crisis during a difficult time in history.
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Distributor subjects
HIV; HIV-Related Stigma; War in Ukraine; Photography; Displacement, Loss & Mental Health; Youth Activism and Community Building; Resilience, Solidarity, and Hope; Human Rights; LGBTQ+; Public Health & Medicine; Youth VoicesKeywords
00:00:14.625 --> 00:00:18.666
We all know the history of AIDS.
00:00:19.000 --> 00:00:22.250
But it’s great to explain
what HIV is in a new way.
00:00:22.250 --> 00:00:26.041
We look through the
eyes of the new generation
00:00:26.041 --> 00:00:29.583
and see how they perceive it.
00:00:42.208 --> 00:00:47.333
I think we keep changing
people's attitudes towards others
00:00:47.333 --> 00:00:51.375
who are the same as them.
00:00:51.375 --> 00:00:54.208
It doesn't matter if the
person is HIV-positive or not.
00:00:58.833 --> 00:00:59.875
I've always been
00:00:59.875 --> 00:01:01.000
drawn to
00:01:01.000 --> 00:01:02.375
making work about the key
00:01:02.375 --> 00:01:05.250
social issues of our times.
00:01:05.250 --> 00:01:06.458
As a photographer
00:01:06.458 --> 00:01:10.125
who spent many years
documenting HIV myself,
00:01:10.125 --> 00:01:12.041
it was time to hand
over the camera
00:01:12.041 --> 00:01:13.333
and hand over the visual
00:01:13.333 --> 00:01:15.333
storytelling to
HIV-positive people
00:01:15.333 --> 00:01:19.000
so they could tell
their own stories.
00:01:19.000 --> 00:01:20.666
Our role was
just to kind of help
00:01:20.666 --> 00:01:23.208
facilitate that.
00:01:26.000 --> 00:01:28.958
I like that we are
a new generation
00:01:28.958 --> 00:01:34.375
that can tell a new
story about HIV.
00:01:35.583 --> 00:01:36.375
Along the way,
00:01:36.375 --> 00:01:39.000
we really wanted
to work in Ukraine.
00:01:39.000 --> 00:01:41.083
Since the brutal
invasion by Russia,
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it really got us
thinking again about
00:01:42.916 --> 00:01:43.833
“How is this affecting
00:01:43.833 --> 00:01:47.541
HIV-positive people in Ukraine?”
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In the city where I live,
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explosions are still
heard quite often.
00:01:56.416 --> 00:02:01.000
And we don't know what
the rockets may target next.
00:02:01.000 --> 00:02:03.250
We don’t know which hospital,
00:02:03.250 --> 00:02:05.208
which kindergarten,
which school,
00:02:05.208 --> 00:02:10.208
or house they might bomb next.
00:02:28.166 --> 00:02:30.583
When I was growing
up, I went to school
00:02:30.583 --> 00:02:34.333
and we lived in a not-so-great
neighborhood in Kyiv.
00:02:35.375 --> 00:02:37.708
From what I remember,
00:02:37.708 --> 00:02:42.416
we had no money to live on.
00:02:42.958 --> 00:02:47.708
There were only two sofas
and we connected them,
00:02:47.708 --> 00:02:50.875
so I could sleep there.
00:02:52.166 --> 00:02:54.791
When the full-scale war started,
my family and I moved to Berlin
00:02:54.791 --> 00:02:57.666
and now I live with my mother
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and my cat in Berlin.
00:03:02.958 --> 00:03:06.916
The German person
who gave to us the flat
00:03:06.916 --> 00:03:08.583
who opened their home,
00:03:08.583 --> 00:03:10.916
they were holding this
sign to welcome us.
00:03:14.625 --> 00:03:17.375
Yesterday, the International
Day of the refugee.
00:03:17.375 --> 00:03:19.875
But no one to celebrate
00:03:19.875 --> 00:03:22.916
refugee of the cat.
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So we need to change something.
00:03:27.958 --> 00:03:28.708
Look at this.
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The picture of this,
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it's very beautiful.
00:03:35.041 --> 00:03:36.500
10 am
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I take it every day.
00:03:37.833 --> 00:03:40.208
And this is at 10 pm.
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When I was 3 years old,
I was in an orphanage
00:03:49.708 --> 00:03:52.541
because my mom was taking drugs.
00:03:52.541 --> 00:03:55.041
And then, after she
quit taking drugs,
00:03:55.041 --> 00:03:56.916
she took me back to her place.
00:03:58.750 --> 00:04:06.083
I found out that I
had HIV in 1999.
00:04:06.333 --> 00:04:10.625
Unfortunately, it turned out that
Yana was also diagnosed with HIV.
00:04:11.916 --> 00:04:16.083
YANA: When I was 10 years old, I
didn't know anything about HIV,
00:04:16.083 --> 00:04:17.708
but I already had AIDS.
00:04:17.708 --> 00:04:20.291
And then my mom told me
00:04:20.291 --> 00:04:23.833
that I was HIV-positive.
00:04:25.666 --> 00:04:27.916
I was on vacation with Yana,
00:04:27.916 --> 00:04:31.416
and when I told her
about her HIV status
00:04:31.416 --> 00:04:37.166
she asked me, "Mom,
am I going to die?"
00:04:38.333 --> 00:04:43.458
I knew what they said at
school about Freddie Mercury,
00:04:43.458 --> 00:04:48.083
that he died of AIDS,
00:04:48.083 --> 00:04:53.916
and I had a great
fear that I might die.
00:04:54.291 --> 00:04:58.208
But my mom told me
that there were medicines
00:04:58.208 --> 00:05:01.083
and people were living with it,
00:05:01.083 --> 00:05:04.625
that everything was
normal and good.
00:05:09.583 --> 00:05:10.666
In some ways, this whole thing
00:05:10.666 --> 00:05:13.791
began with Yana Panfilova.
00:05:13.791 --> 00:05:16.083
And the reason to do
a photography project
00:05:16.083 --> 00:05:18.583
at a time like this
00:05:18.583 --> 00:05:20.000
is that the photographs
and the stories
00:05:20.000 --> 00:05:22.666
that are connected
to those photographs
00:05:22.666 --> 00:05:26.041
mean something so
deeply and can motivate
00:05:26.041 --> 00:05:29.083
a public to engage
in a particular cause.
00:05:36.208 --> 00:05:37.875
I spent some time
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working with her
in her apartment
00:05:39.708 --> 00:05:42.625
to do some
photographic education.
00:05:43.916 --> 00:05:47.625
I encouraged her
to use the camera
00:05:47.625 --> 00:05:50.750
as a tool for self
representation.
00:05:54.375 --> 00:05:55.750
The nature of infection
00:05:55.750 --> 00:05:57.666
in Ukraine and
Eastern Europe as well,
00:05:57.666 --> 00:05:58.916
and Russia was very particular
00:05:58.916 --> 00:06:01.125
and was being very driven
00:06:01.125 --> 00:06:03.916
by intravenous drug use.
00:06:03.916 --> 00:06:06.000
Yana and so many young people
00:06:06.000 --> 00:06:08.625
in Ukraine, particularly young
people who were born positive,
00:06:08.625 --> 00:06:11.000
were facing immense stigma.
00:06:12.583 --> 00:06:16.375
When I was 3 years old,
00:06:16.375 --> 00:06:18.583
and I was looked
after by doctors,
00:06:18.583 --> 00:06:21.125
they were wearing
3 pairs of gloves
00:06:21.125 --> 00:06:23.041
and 3 gauze masks,
00:06:23.041 --> 00:06:25.000
and they were only
touching my stomach.
00:06:26.125 --> 00:06:29.833
When I talked to other
HIV-positive people,
00:06:29.833 --> 00:06:34.333
I found out that some of them
had to eat from separate dishes
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because their parents did
not want to share plates.
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Until 2004,
00:06:38.791 --> 00:06:42.166
there was no
treatment in Ukraine
00:06:42.166 --> 00:06:46.583
so we all felt every day
00:06:46.583 --> 00:06:49.458
that if something
happened to our health
00:06:49.458 --> 00:06:51.958
it could end badly.
00:06:56.708 --> 00:07:00.125
When Yana revealed her HIV
status, she was very worried,
00:07:00.125 --> 00:07:04.166
but many of her
classmates supported her.
00:07:04.166 --> 00:07:07.625
She did not expect such support.
00:07:10.875 --> 00:07:13.083
But at the same time,
00:07:13.083 --> 00:07:15.916
one of the parents
called me and said,
00:07:15.916 --> 00:07:19.791
"Your daughter spent the night
00:07:19.791 --> 00:07:23.041
at another classmate’s house
00:07:23.041 --> 00:07:28.166
and now we all have
to get tested for HIV.”
00:07:34.208 --> 00:07:36.791
YANA: Previously,
people with HIV died
00:07:36.791 --> 00:07:39.416
from a lack of pills.
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Now we are a
different generation.
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We have pills,
00:07:44.958 --> 00:07:48.625
but we have other
problems, such as a public
00:07:48.625 --> 00:07:53.625
that does not support us
and stigmatizes us instead.
00:07:55.125 --> 00:07:59.916
When I first started working
for UNAIDS in 2004 in Kyiv,
00:07:59.916 --> 00:08:03.250
I got very close to Yana
Panfilova and her mother,
00:08:03.250 --> 00:08:06.333
and at the time,
Yana had just started
00:08:06.333 --> 00:08:10.166
to create a new
movement of young people.
00:08:10.541 --> 00:08:15.958
We wanted to make
not only a project for
00:08:15.958 --> 00:08:21.458
HIV-positive adolescents,
but for adolescents in general,
00:08:21.458 --> 00:08:24.500
and that's when
Teenergizer was created.
00:08:24.958 --> 00:08:26.833
VINAY: What I think
makes Teenergizer unique
00:08:26.833 --> 00:08:30.791
is what I would
call the audacity
00:08:30.791 --> 00:08:32.208
of the young people
00:08:32.208 --> 00:08:34.166
to demand and insist
00:08:34.166 --> 00:08:38.333
that their voice is heard.
00:08:39.083 --> 00:08:41.875
We were doing very well.
00:08:41.875 --> 00:08:44.916
We had made such
a good community.
00:08:46.583 --> 00:08:49.041
Until February 24th, 2022,
00:08:49.041 --> 00:08:52.500
I thought living with
HIV was the biggest
00:08:52.500 --> 00:08:56.833
challenge of my
life, but I was wrong.
00:08:58.666 --> 00:08:59.875
It was unprovoked.
00:08:59.875 --> 00:09:01.333
But this is what Russian
00:09:01.333 --> 00:09:04.250
President Vladimir Putin
unleashed on Ukraine.
00:09:04.250 --> 00:09:05.291
We receive reports
00:09:05.291 --> 00:09:07.333
that Russian forces
have reached an area
00:09:07.333 --> 00:09:10.125
just north of Ukraine's
capital city, Kyiv...
00:09:11.208 --> 00:09:14.583
I returned to Ukraine 3 days
before the full-scale invasion,
00:09:14.583 --> 00:09:19.625
which began at 4 am
on February 24, 2022.
00:09:19.625 --> 00:09:21.166
I slept through
00:09:21.166 --> 00:09:23.416
all the bombs and
when I woke up,
00:09:23.416 --> 00:09:26.125
it was a completely
different reality –
00:09:26.125 --> 00:09:29.166
different from the reality
00:09:29.166 --> 00:09:32.500
in which I fell asleep.
00:09:33.750 --> 00:09:37.625
I had just moved
to Washington, D.C.
00:09:37.625 --> 00:09:41.583
and was on a daily
basis in contact
00:09:41.583 --> 00:09:42.500
with Yana
00:09:42.500 --> 00:09:44.000
and with her mother,
00:09:44.000 --> 00:09:45.958
and both she and her mother
00:09:45.958 --> 00:09:48.291
were very concerned as to,
00:09:48.291 --> 00:09:52.833
you know, was
Kyiv going to fall?
00:09:52.833 --> 00:09:56.375
They were just
bombing everything.
00:09:56.375 --> 00:09:59.166
There was no air defense.
00:09:59.166 --> 00:10:04.500
We felt completely defenseless.
00:10:06.291 --> 00:10:10.625
I was lucky that I
had two mattresses.
00:10:10.625 --> 00:10:13.833
We used one mattress
00:10:13.833 --> 00:10:16.875
to cover the windows
in the kitchen.
00:10:16.875 --> 00:10:19.291
We set the other
one up in the corridor
00:10:19.291 --> 00:10:22.625
and slept there.
00:10:22.625 --> 00:10:27.916
YANA: At one point, we
realized that we had to go
00:10:27.916 --> 00:10:31.291
and we decided
to leave by train.
00:10:31.875 --> 00:10:33.500
After some very intensive
00:10:33.500 --> 00:10:35.500
and I think some very
emotional conversations
00:10:35.500 --> 00:10:36.208
that we had,
00:10:36.208 --> 00:10:38.125
Yana and her mother made really
00:10:38.125 --> 00:10:39.833
a life changing decision
00:10:39.833 --> 00:10:41.458
to at least drive their car
00:10:41.458 --> 00:10:42.333
from their home
00:10:42.333 --> 00:10:43.875
in the center of Kyiv
00:10:43.875 --> 00:10:46.541
to close to the train station.
00:10:46.541 --> 00:10:53.000
When I was leaving Kyiv,
00:10:53.000 --> 00:10:55.833
I was driving by
car and I was crying
00:10:55.833 --> 00:10:59.125
because I was saying
goodbye to Kyiv,
00:10:59.125 --> 00:11:05.125
and I didn't know if I
would ever come back.
00:11:05.916 --> 00:11:07.500
When we left Ukraine,
00:11:07.500 --> 00:11:09.708
we had nothing. No apartment.
00:11:09.708 --> 00:11:12.208
We were going to
an unknown place.
00:11:12.208 --> 00:11:14.541
We had nothing at all,
00:11:14.541 --> 00:11:16.250
and we were just figuring
things out as we went along.
00:11:17.541 --> 00:11:20.833
At that moment
00:11:20.833 --> 00:11:24.000
I had to lead everyone
because I was
00:11:24.000 --> 00:11:26.416
the only one who
understood English.
00:11:26.416 --> 00:11:30.041
So I found an
apartment for us in Berlin
00:11:30.041 --> 00:11:33.125
and we moved here.
00:11:35.916 --> 00:11:37.250
In 2014,
00:11:37.250 --> 00:11:39.250
we were planning
to work in Ukraine
00:11:39.250 --> 00:11:40.166
and it almost happened
00:11:40.166 --> 00:11:41.541
but it was actually disrupted by
00:11:41.541 --> 00:11:42.791
the Russian invasion.
00:11:42.791 --> 00:11:43.833
It’s more like an activist.
00:11:43.833 --> 00:11:46.333
Yes, like activist,
you need something...
00:11:46.333 --> 00:11:48.791
Okay, like a statement,
the way you are holding it.
00:11:48.791 --> 00:11:49.625
Right, I get it.
00:11:50.000 --> 00:11:51.000
We really
00:11:51.000 --> 00:11:52.791
tried to work in
00:11:52.791 --> 00:11:54.500
places which are
really important
00:11:54.500 --> 00:11:55.583
in the global journey,
00:11:55.583 --> 00:11:57.750
in the global history of HIV.
00:11:58.208 --> 00:12:00.166
Since we began in 2007,
00:12:00.166 --> 00:12:02.750
I worked with David Gere
00:12:02.750 --> 00:12:03.833
to develop the
00:12:03.833 --> 00:12:05.916
Through Positive Eyes project.
00:12:05.916 --> 00:12:07.500
When we started
building this project
00:12:07.500 --> 00:12:09.541
something like 15 years ago,
00:12:09.541 --> 00:12:11.708
we had no idea where
it was going to end up
00:12:11.708 --> 00:12:15.416
or how it would grow over time.
00:12:15.416 --> 00:12:16.916
Every time we did the project,
00:12:16.916 --> 00:12:19.666
we worked with a group
of HIV-positive people.
00:12:20.375 --> 00:12:23.833
And it's been this
kind of long journey of
00:12:23.833 --> 00:12:25.750
figuring out how best to do it.
00:12:28.125 --> 00:12:29.958
I like to make what I call
00:12:29.958 --> 00:12:32.000
tools of visual activism,
00:12:32.000 --> 00:12:34.375
tools which can be
used to change the world.
00:12:36.583 --> 00:12:38.666
I think we know that
it's not a perfect project,
00:12:38.666 --> 00:12:40.000
but over the years,
00:12:40.000 --> 00:12:41.833
the images were
really widely used in
00:12:41.833 --> 00:12:44.875
global campaigns.
00:12:52.208 --> 00:12:54.625
Yana helped us meet
many of the people.
00:12:54.625 --> 00:12:56.333
And, you know, she
was in some ways
00:12:56.333 --> 00:12:58.000
our gateway into the project.
00:12:58.000 --> 00:13:00.041
And because of the difficulties
00:13:00.041 --> 00:13:00.833
of being in Ukraine
00:13:00.833 --> 00:13:01.916
and working in Ukraine,
00:13:01.916 --> 00:13:06.250
we decided to do the
workshop in Berlin.
00:13:06.250 --> 00:13:09.500
Before the war we were
also trying to connect people,
00:13:09.500 --> 00:13:11.416
especially
HIV-positive teenagers
00:13:11.416 --> 00:13:15.125
and HIV-negative teenagers.
00:13:15.416 --> 00:13:18.125
When I moved to
Berlin, the idea of mine
00:13:18.125 --> 00:13:19.041
the same idea.
00:13:19.041 --> 00:13:21.250
So that's why we are just trying
00:13:21.250 --> 00:13:22.958
to catch up with
other young people
00:13:22.958 --> 00:13:27.333
living with HIV.
00:13:28.916 --> 00:13:33.166
Maybe we can bring
some teenagers from Kyiv,
00:13:33.166 --> 00:13:35.500
only like two persons,
00:13:35.500 --> 00:13:37.333
and we connect
with the other girl,
00:13:37.333 --> 00:13:38.791
like three person.
00:13:38.791 --> 00:13:41.750
And now we have
like 6 or 5 people.
00:13:41.750 --> 00:13:46.083
It should be really,
really nice to do this.
00:13:47.541 --> 00:13:49.375
War is really tough and war
00:13:49.375 --> 00:13:51.291
is being you more depressed.
00:13:51.291 --> 00:13:54.416
So many people in
Ukraine that more affected
00:13:54.416 --> 00:13:56.125
and now they're
feeling so much stress
00:13:56.125 --> 00:14:01.208
and you know,
isolation and depression.
00:14:02.125 --> 00:14:05.416
In Berlin, you feel stability
00:14:05.416 --> 00:14:07.291
and you feel life.
00:14:07.291 --> 00:14:12.000
I mean like, you don't
need to be a survivor.
00:14:13.375 --> 00:14:15.916
Yehor came to us from Ukraine
00:14:16.416 --> 00:14:18.000
as well as Liza.
00:14:18.208 --> 00:14:20.500
They came together with Mariia.
00:14:21.416 --> 00:14:25.041
Mariia, her home was
destroyed by Russians.
00:14:25.041 --> 00:14:27.041
And now she's
openly living with HIV.
00:14:27.041 --> 00:14:28.208
Actually, when it was last time
00:14:28.208 --> 00:14:29.833
in Kyiv, few months ago,
00:14:29.833 --> 00:14:31.708
she opened her
status for the first time.
00:14:31.708 --> 00:14:32.958
So that's amazing
00:14:32.958 --> 00:14:34.583
young people living with HIV
00:14:34.583 --> 00:14:36.875
open their HIV status.
00:14:36.875 --> 00:14:38.708
And also, it's good to,
00:14:38.708 --> 00:14:42.041
to connect them to
be with each other
00:14:42.041 --> 00:14:44.166
and to have the space to create
00:14:44.166 --> 00:14:46.000
and to make some photos.
00:14:46.166 --> 00:14:48.416
Oh no, everything is blurry!
00:14:48.625 --> 00:14:53.833
Ok that’s it. It will
take four pictures now.
00:14:54.375 --> 00:14:56.000
And then I think
it's very interesting
00:14:56.000 --> 00:14:58.666
what's, what's happened in,
00:14:58.666 --> 00:15:02.791
what's happened
next, like in Ukraine?
00:15:04.291 --> 00:15:09.041
YEHOR: We will arrive
at 7 pm in Warsaw
00:15:09.041 --> 00:15:12.458
and our next bus is at 9:30 pm.
00:15:28.166 --> 00:15:28.958
This is very different
00:15:28.958 --> 00:15:30.333
to a normal way of working,
00:15:30.333 --> 00:15:32.000
where at the end of the workshop
00:15:32.000 --> 00:15:33.750
it’s kind of the full stop
00:15:33.750 --> 00:15:34.583
and the conclusion.
00:15:34.583 --> 00:15:36.458
Whereas this is
going to continue.
00:15:36.458 --> 00:15:38.166
And I'm kind of very interested
00:15:38.166 --> 00:15:42.750
to see where this might go.
00:15:44.083 --> 00:15:46.458
I hope that it can develop
00:15:46.458 --> 00:15:48.750
and that everyone in the group
00:15:48.750 --> 00:15:50.833
will take the
impetus of this time
00:15:50.833 --> 00:15:55.708
to develop their work
and tell the story of
00:15:55.708 --> 00:15:57.875
HIV-positive people in Ukraine.
00:15:57.875 --> 00:16:00.541
And tell the story of Ukraine.
00:16:02.125 --> 00:16:04.500
YANA: Sometimes it
is really hard because
00:16:04.500 --> 00:16:06.041
you can see that
00:16:06.041 --> 00:16:07.958
so many people
don't really understand
00:16:07.958 --> 00:16:09.625
what's really going on.
00:16:09.625 --> 00:16:11.625
And that's why
it's very important
00:16:11.625 --> 00:16:13.000
to show the truth
00:16:13.000 --> 00:16:16.375
especially with photography.
00:16:21.416 --> 00:16:23.666
Every family have a tragedy.
00:16:23.666 --> 00:16:25.625
Every family in Ukraine.
00:16:25.625 --> 00:16:28.875
Tragedy with husband,
tragedy with son
00:16:28.875 --> 00:16:31.458
with brother, with others
00:16:31.458 --> 00:16:33.750
with home...
00:16:33.750 --> 00:16:38.125
Because the war is so long.
00:16:50.541 --> 00:16:52.333
My name is Liza.
00:16:52.333 --> 00:16:54.333
I am from Kyiv.
00:16:58.416 --> 00:17:00.791
Now all the equipment,
00:17:01.000 --> 00:17:05.041
all the tanks and cars
that are in our city center,
00:17:05.041 --> 00:17:07.958
it's all, unfortunately
00:17:07.958 --> 00:17:10.458
because of Russia –
00:17:10.458 --> 00:17:13.208
the aggressor
country that decided
00:17:13.208 --> 00:17:17.291
to try to take away
our independence,
00:17:17.291 --> 00:17:19.833
our rights, and our freedom.
00:17:30.250 --> 00:17:35.083
Every day I understand
that, unfortunately,
00:17:35.083 --> 00:17:39.041
there will be more and
more of these vehicles.
00:17:39.833 --> 00:17:43.000
And some of the guys
who are now at the front
00:17:43.000 --> 00:17:45.875
fighting on the very frontline,
00:17:45.875 --> 00:17:47.875
some of our soldiers,
unfortunately,
00:17:47.875 --> 00:17:52.416
do not return home.
00:17:58.958 --> 00:18:00.333
I'm sure that you read
00:18:00.333 --> 00:18:02.916
many scientist researchers
00:18:02.916 --> 00:18:04.833
admitted that during the war
00:18:04.833 --> 00:18:06.416
and during the cataclysms
00:18:06.416 --> 00:18:08.208
and other tragedies,
00:18:08.208 --> 00:18:11.875
the infection, like
HIV is increasing.
00:18:11.875 --> 00:18:15.083
And Ukraine –
it's not exception.
00:18:16.916 --> 00:18:21.250
Treatment of HIV is key
to someone's survival.
00:18:21.833 --> 00:18:24.333
But when the war happens
00:18:25.250 --> 00:18:28.208
people think in other
terms of survival.
00:18:28.208 --> 00:18:30.708
They are forced to
leave their homes,
00:18:30.708 --> 00:18:32.500
or they are on the road.
00:18:32.500 --> 00:18:36.041
They may not have a job.
They may not have income.
00:18:36.041 --> 00:18:40.083
So they think about
those things first.
00:18:43.500 --> 00:18:49.541
YANA: I think that the HIV
story will spread and grow.
00:18:49.541 --> 00:18:54.416
It’s normal because it
always does in times of war.
00:18:58.000 --> 00:19:00.500
LIZA: I was born in Kyiv,
00:19:00.500 --> 00:19:05.666
but when I was a year
old, I moved to Bucha.
00:19:08.083 --> 00:19:11.541
The first few days of the war
00:19:11.541 --> 00:19:16.083
were incredibly scary.
00:19:24.250 --> 00:19:27.916
When you hear a tank
pass by your house
00:19:27.916 --> 00:19:30.958
and you look out the window,
00:19:30.958 --> 00:19:33.583
and you realize it
is a Russian tank
00:19:33.583 --> 00:19:36.208
and see all of its markings,
00:19:37.000 --> 00:19:40.916
you completely lose it.
00:19:46.500 --> 00:19:49.916
So I hid in the basement.
00:19:49.916 --> 00:19:52.083
I was there for 5 days.
00:19:52.083 --> 00:19:54.666
I only had a sausage, some bread
00:19:54.666 --> 00:19:57.625
and a big bottle of water,
00:19:57.625 --> 00:19:59.750
which I needed to
take my medicine.
00:19:59.750 --> 00:20:02.291
I understood that,
without medicine
00:20:02.291 --> 00:20:05.583
I couldn't survive.
00:20:15.750 --> 00:20:18.333
At the moment
00:20:18.333 --> 00:20:21.333
the safest place in our country
00:20:21.708 --> 00:20:23.166
is probably the metro.
00:20:23.958 --> 00:20:25.875
I took the photos there
00:20:25.875 --> 00:20:31.125
to remind people of
00:20:31.125 --> 00:20:34.208
all the panic when
the air raid sirens go off
00:20:34.208 --> 00:20:36.833
and many come down here,
00:20:36.833 --> 00:20:39.375
some with small children,
some with animals,
00:20:39.375 --> 00:20:44.125
some with their parents.
00:20:46.916 --> 00:20:50.375
Like Yana, I was
also born with HIV.
00:20:50.916 --> 00:20:53.958
I found out about it
when I was 9 years old.
00:20:54.166 --> 00:21:00.208
I was born with HIV because
my mother injected drugs.
00:21:00.833 --> 00:21:05.541
I opened up about
my HIV status in 2019,
00:21:05.541 --> 00:21:08.958
when my mother died.
00:21:09.583 --> 00:21:11.750
GIDEON: A big
part of our priority
00:21:11.750 --> 00:21:14.750
in the storytelling
is building empathy
00:21:14.750 --> 00:21:17.375
for the people who
00:21:17.375 --> 00:21:19.083
are telling the story
with their photographs.
00:21:19.500 --> 00:21:21.166
So it's really kind of a window
00:21:21.166 --> 00:21:22.416
into people's lives
00:21:22.416 --> 00:21:24.541
which they've
created themselves.
00:21:27.166 --> 00:21:32.375
Yehor, I know him when
Teenergizer established.
00:21:32.625 --> 00:21:33.916
He is a real activist.
00:21:33.916 --> 00:21:36.750
And now he want
to be with the army.
00:21:41.375 --> 00:21:43.958
My name is Yehor.
I'm from Kryvyi Rih.
00:21:46.166 --> 00:21:49.250
I have been living with
this virus since I was born,
00:21:49.250 --> 00:21:52.541
and only at the age of 13
did I learn about my status.
00:21:56.041 --> 00:21:58.791
Being positive did not interfere
with my life in any way
00:21:59.416 --> 00:22:04.291
until the moment I
decided to go and connect
00:22:04.291 --> 00:22:06.666
my life with the army or police
00:22:06.666 --> 00:22:10.041
or the military in general.
00:22:11.958 --> 00:22:14.750
Since childhood, I have been
very fond of military culture,
00:22:14.750 --> 00:22:17.958
and for me, military culture is
00:22:17.958 --> 00:22:20.166
something masculine,
something that
00:22:20.166 --> 00:22:22.166
a real man should do.
00:22:23.375 --> 00:22:25.375
I was in the territorial defense
00:22:25.791 --> 00:22:29.500
until they began assigning
us to military units.
00:22:29.500 --> 00:22:33.916
It turned out that I did not
have a military certificate,
00:22:33.916 --> 00:22:38.666
and I was deemed unfit to serve.
00:22:38.666 --> 00:22:43.666
There was a medical examination.
00:22:43.666 --> 00:22:48.583
I told the medical examiner
that I am HIV-positive,
00:22:48.583 --> 00:22:52.208
and I was told directly,
"This is the end.
00:22:52.208 --> 00:22:55.041
You can pack your
things and go home."
00:22:57.375 --> 00:23:01.166
This is how my military
career began and ended.
00:23:02.833 --> 00:23:08.041
Now I have to
somehow change my life.
00:23:08.041 --> 00:23:10.833
Change my goals, change
my dreams, thoughts.
00:23:11.833 --> 00:23:14.875
It is very difficult,
especially when you don't
00:23:14.875 --> 00:23:17.041
see yourself as anything
other than a military person
00:23:17.041 --> 00:23:21.583
since childhood.
It is very difficult.
00:23:21.583 --> 00:23:25.291
Because of my HIV
status, unfortunately,
00:23:25.291 --> 00:23:28.000
the road to the armed
forces is closed to me.
00:23:28.000 --> 00:23:30.750
I hope temporarily.
00:23:34.916 --> 00:23:38.166
I wanted something
new, and I found
00:23:38.166 --> 00:23:41.750
a friend who has his own
shop, his own production,
00:23:41.750 --> 00:23:45.666
who taught me in
principle all of this craft.
00:23:46.291 --> 00:23:49.583
Thanks to him, I
found my new hobby,
00:23:50.375 --> 00:23:52.875
which is also connected
with military culture,
00:23:52.875 --> 00:23:57.750
and now it's a space
for me from the idea
00:23:57.750 --> 00:24:02.708
that I want to go to the
frontline. I need to go there.
00:24:03.625 --> 00:24:07.583
The psychologist told me
00:24:07.583 --> 00:24:11.291
that I need to accept the
reality that I will no longer
00:24:11.291 --> 00:24:13.291
be able to be in the
ranks of the Armed Forces,
00:24:13.291 --> 00:24:15.458
and I need to somehow contribute
00:24:15.458 --> 00:24:19.166
in other ways.
00:24:19.750 --> 00:24:22.750
I'm looking for something
new in myself right now.
00:24:35.916 --> 00:24:39.875
I can say, “like
many countries...
00:24:39.875 --> 00:24:44.083
Many countries like Russia are only
interested in promoting family values
00:24:44.083 --> 00:24:48.458
than ending AIDS. This is
why the role of young people...
00:24:48.458 --> 00:24:50.333
that young people
and civil society,
00:24:50.333 --> 00:24:52.000
especially young people with HIV
00:24:52.000 --> 00:24:53.666
and young key populations are
00:24:53.666 --> 00:24:55.041
under the greatest attack.”
00:24:55.041 --> 00:24:56.708
If I print my speech there.
00:24:56.708 --> 00:24:58.375
Is it possible or not?
00:25:00.291 --> 00:25:01.958
Yeah, yeah.
00:25:03.000 --> 00:25:04.666
Ah good, thank you so much.
00:25:06.291 --> 00:25:07.291
We need to make
00:25:07.291 --> 00:25:09.625
radical changes.
00:25:09.791 --> 00:25:11.458
Many HIV people,
00:25:11.458 --> 00:25:12.916
they live under
00:25:12.916 --> 00:25:14.583
the huge stigma.
00:25:15.041 --> 00:25:18.000
We are dying of
pandemic of mental health,
00:25:18.000 --> 00:25:20.166
and also we die
from discrimination.
00:25:20.750 --> 00:25:23.625
And HIV people
are more vulnerable.
00:25:28.500 --> 00:25:31.166
I met Mariia in April.
00:25:31.166 --> 00:25:32.250
It was first time
00:25:32.250 --> 00:25:33.750
when she wanted
00:25:33.750 --> 00:25:36.500
to talk about her HIV status.
00:25:37.791 --> 00:25:40.666
I have had HIV since birth,
00:25:40.666 --> 00:25:42.791
and I learned about it
00:25:42.791 --> 00:25:47.208
from a psychologist
in a group session.
00:25:47.208 --> 00:25:50.791
My mother is positive and
she does not tell our relatives
00:25:50.791 --> 00:25:53.375
because she does
not want them to know.
00:25:53.833 --> 00:25:55.958
I don't mind telling people.
00:25:55.958 --> 00:26:00.583
You just need to know
the right place and time.
00:26:00.583 --> 00:26:04.791
We often went to
doctors and hospitals,
00:26:04.791 --> 00:26:09.083
and when they heard
about our HIV status,
00:26:09.083 --> 00:26:12.416
they said, "Oh, that’s scary,"
00:26:12.416 --> 00:26:17.000
as if I had some kind
of infection that can
00:26:17.000 --> 00:26:19.166
be transmitted by touch,
00:26:19.166 --> 00:26:22.375
or as if it was
some kind of plague.
00:26:22.375 --> 00:26:24.500
These are doctors.
They should know,
00:26:24.500 --> 00:26:27.458
but they treated it that way.
00:26:27.458 --> 00:26:31.166
Even in the hospital,
when my mother was
00:26:31.166 --> 00:26:33.916
in the 7th month of pregnancy,
00:26:33.916 --> 00:26:35.500
when it wasn't possible,
00:26:35.500 --> 00:26:40.916
the doctor offered to
perform an abortion.
00:26:43.458 --> 00:26:45.500
She faced so much.
00:26:45.500 --> 00:26:48.583
Her house destroyed by Russians.
00:26:48.583 --> 00:26:51.208
I think she definitely
need to tell the world
00:26:51.208 --> 00:26:53.583
what's really, what's going on.
00:26:56.166 --> 00:26:59.208
I could hear the tanks.
00:26:59.208 --> 00:27:03.166
You could hear
a shell being fired,
00:27:03.166 --> 00:27:04.916
then a whistle, and then a shell
00:27:04.916 --> 00:27:07.375
falling somewhere in the garden.
00:27:07.375 --> 00:27:09.833
A barn was hit
00:27:09.833 --> 00:27:12.500
and set a neighbor's
house on fire
00:27:12.500 --> 00:27:15.375
as well as another building.
00:27:19.083 --> 00:27:21.708
I don’t think they were
aiming, but it happened.
00:27:26.416 --> 00:27:28.416
We were here until
the last moment,
00:27:28.416 --> 00:27:30.541
leaving from the burning house.
00:27:30.541 --> 00:27:32.541
This used to be the house,
00:27:32.541 --> 00:27:34.541
and there was a
kitchen right here.
00:27:34.541 --> 00:27:36.541
Here was my
grandmother’s bedroom.
00:27:36.541 --> 00:27:39.958
Here was a hallway,
00:27:39.958 --> 00:27:44.458
and a living room
and a dining room.
00:27:49.041 --> 00:27:53.250
The house seemed so big, and
now that we are looking at it,
00:27:53.250 --> 00:27:55.750
it seems small.
00:27:58.833 --> 00:28:02.000
The house was hit. We
went out, and we didn't
00:28:02.000 --> 00:28:05.125
find another option
besides hiding in the barn,
00:28:05.125 --> 00:28:07.125
which is next to the
house and still intact.
00:28:07.125 --> 00:28:09.750
It could have also been hit.
00:28:10.666 --> 00:28:13.375
We probably sat
there for, I don’t know,
00:28:13.375 --> 00:28:16.083
half an hour, and the
barn doors don't close
00:28:16.083 --> 00:28:20.291
so I had to hold them
shut with my hands.
00:28:27.000 --> 00:28:29.000
And that is probably my laptop.
00:28:33.625 --> 00:28:35.583
Yeah.
00:28:35.916 --> 00:28:39.375
If you have several
air raid alarms a day,
00:28:39.375 --> 00:28:42.541
and that over years,
00:28:42.541 --> 00:28:45.416
I think everyone is tired.
00:28:45.416 --> 00:28:50.625
Everyone is concerned
about the future.
00:28:54.333 --> 00:28:58.583
I think that although this war
was not started by young people,
00:28:58.583 --> 00:29:02.000
we will be the
generation that will end it,
00:29:02.000 --> 00:29:04.500
and we will remember this war.
00:29:04.500 --> 00:29:08.875
Unfortunately, the war is having
00:29:08.875 --> 00:29:12.625
a very strong impact on
the younger generation,
00:29:12.625 --> 00:29:15.500
especially in terms of
mental health problems.
00:29:18.333 --> 00:29:21.791
MODERATOR: Yana
Panfilova, you are from Ukraine.
00:29:21.791 --> 00:29:23.583
I know you're not
living in Ukraine
00:29:23.583 --> 00:29:24.541
at the moment.
00:29:24.541 --> 00:29:26.375
Nevertheless,
you are still active.
00:29:26.375 --> 00:29:30.125
The HIV response
is still working.
00:29:30.125 --> 00:29:31.875
For the last 16 months,
00:29:31.875 --> 00:29:34.000
Ukraine has been
attacked by Russia.
00:29:34.000 --> 00:29:35.208
A big part of Ukraine
00:29:35.208 --> 00:29:38.125
are still under
Russian occupation.
00:29:38.125 --> 00:29:40.000
Today, we are way off track
00:29:40.000 --> 00:29:42.375
and HIV response
is under attack.
00:29:42.375 --> 00:29:47.375
Ukraine is now diagnosed
21% more new HIV cases
00:29:47.375 --> 00:29:48.583
than last year.
00:29:48.583 --> 00:29:51.666
Because when people
are under a rocket attack
00:29:51.666 --> 00:29:53.333
or must defend their homeland,
00:29:53.333 --> 00:29:56.708
access to condom and PrEP
are not your top priorities.
00:29:56.708 --> 00:29:58.625
People living with
HIV in occupied
00:29:58.625 --> 00:30:00.291
Donetsk are now forced
00:30:00.291 --> 00:30:01.916
to get the Russian passport
00:30:01.916 --> 00:30:04.250
in exchange for
access to HIV treatment.
00:30:04.250 --> 00:30:08.750
I think we need to operate
and mobilize all resources
00:30:08.750 --> 00:30:10.291
and to help our region.
00:30:10.291 --> 00:30:13.125
Because now our region
is burned in the fire.
00:30:15.375 --> 00:30:17.833
We have here the medicine
00:30:17.833 --> 00:30:19.500
for other hospitals.
00:30:20.250 --> 00:30:23.250
Sometimes we have
here the explosion
00:30:23.250 --> 00:30:24.958
and every medical center,
00:30:24.958 --> 00:30:30.500
every building have
to have a shelter.
00:30:31.250 --> 00:30:32.916
If ballistic rockets
00:30:32.916 --> 00:30:35.875
they directly make explosion,
00:30:35.875 --> 00:30:37.250
this is shelter
00:30:37.250 --> 00:30:39.208
not helping.
00:30:43.375 --> 00:30:47.958
We’re back to the problem
with the virus in Ukraine,
00:30:47.958 --> 00:30:54.916
just when support for
HIV-positive people was beginning.
00:30:54.916 --> 00:31:00.666
This war is turning
everything back in time
00:31:00.666 --> 00:31:03.958
and now we need
to work even harder.
00:31:06.125 --> 00:31:09.708
I really hope we can
get these stories out.
00:31:09.708 --> 00:31:12.458
Particularly at this point,
the world is losing interest.
00:31:12.458 --> 00:31:15.666
It's becoming an endless
war that's dragging on.
00:31:15.666 --> 00:31:17.541
It has also been
a real challenge
00:31:17.541 --> 00:31:18.541
to keep
00:31:18.541 --> 00:31:20.166
Ukraine in the headlines,
00:31:20.166 --> 00:31:22.500
to keep support
for Ukraine strong,
00:31:22.500 --> 00:31:25.208
to make sure that
people continue
00:31:25.208 --> 00:31:26.458
to understand
00:31:26.458 --> 00:31:29.250
that there are
millions of Ukrainians
00:31:29.250 --> 00:31:31.583
who are still living outside
of Ukraine's borders
00:31:31.583 --> 00:31:33.041
as temporary or long-term
00:31:33.041 --> 00:31:34.583
refugees in other countries.
00:31:37.208 --> 00:31:40.083
Ukraine lost their people.
00:31:40.083 --> 00:31:42.000
Lost because of war.
00:31:42.000 --> 00:31:44.166
Many people died.
00:31:45.333 --> 00:31:46.625
But we have to,
00:31:46.625 --> 00:31:48.541
not only win the war.
00:31:48.541 --> 00:31:51.125
We have to fight enemy.
00:31:51.125 --> 00:31:53.291
We have to fight corruption.
00:31:53.291 --> 00:31:55.791
And we have to fight infection.
00:31:55.791 --> 00:31:59.416
And this is our world tasks.
00:32:01.375 --> 00:32:04.541
We are not going to
accept the status quo
00:32:04.541 --> 00:32:07.000
because status
quo is killing us.
00:32:07.000 --> 00:32:09.291
I really scared that
our young people,
00:32:09.291 --> 00:32:11.333
especially teenagers
00:32:11.333 --> 00:32:14.333
now at the biggest
risk to have HIV
00:32:14.333 --> 00:32:17.125
because they don't
know how to operate
00:32:17.125 --> 00:32:18.833
with mental health.
00:32:18.833 --> 00:32:21.041
Thank you so much.
00:32:29.500 --> 00:32:32.791
MARIIA: I believe that
since we are young people,
00:32:32.791 --> 00:32:34.791
and there aren’t
many young people
00:32:34.791 --> 00:32:37.916
who are willing to
talk about HIV openly,
00:32:37.916 --> 00:32:41.083
that what we say
will be an example
00:32:41.083 --> 00:32:44.625
for the future, for the
development of the country,
00:32:44.625 --> 00:32:48.875
and for people living with HIV.
00:33:02.375 --> 00:33:03.375
I want to break free.
00:33:03.375 --> 00:33:06.125
It was my first
time, like, first tattoo.
00:33:06.125 --> 00:33:10.791
One day, like all
HIV-positive people, we will,
00:33:10.958 --> 00:33:13.041
like, wake up,
and one day we will
00:33:13.041 --> 00:33:15.916
we have, some vaccine,
00:33:15.916 --> 00:33:17.916
and we will be free.
Distributor: GOOD DOCS
Length: 35 minutes
Date: 2025
Genre: Mixed
Language: English; Ukrainian / English subtitles
Grade: 10-12, College, Adults
Color/BW:
Closed Captioning: Not available
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